Hemophilia Blogs from Around the World


Top of the world

Written by Ryanne on Friday, 24 June 2016 17:17. Posted in Hemophilia is for Girls

So, today Ive been listening to Top of the World by Patty Griffin. Its my favorite song in the whole world. Its also a very sad song. I've been feeling really sad lately and tired. Ive had my period for 6 weeks, my moms been in the hospital for 9 weeks and theres been a few other ups and downs for me and my family. I'm getting a bit stressed...

Sippet study finally regarding plasma products

Written by Andy on Thursday, 16 June 2016 10:02. Posted in Sweet Afliction

All you have to do is google new Sippet study on plasma products and you will pull it up.  Go read for yourself but it will be interesting to see if MASAC changes their recommendations  for PUPS.  I am a big believer in plasma products and this study really is interesting.  Not that recombinant products are bad at all, but plasma products will sti...


May ramblings

Written by Ryanne on Sunday, 29 May 2016 22:29. Posted in Hemophilia is for Girls

So, Ive started to go to the gym 3 times a week. Ive been doing it for the past 4 weeks and I must say I feel a lot better. To my dismay I haven't lost any weight but I must say I am feeling better and I am excited to see how long I can go without a bleed.
I know that the stronger and fitter I get the healthier I will be but it seems like ive been

Breathing a sigh of relief

Written by Ryanne on Monday, 30 May 2016 15:01. Posted in Hemophilia is for Girls

So, today I had my chest X Ray and Doctors appointment with my pulmonary specialist. My X Ray showed that there are no more signs of Sarcoidosis in my lungs and my lymph nodes are no longer swollen. I am so happy to get this news because one of the last things I needed was another weird disease. 
I don't need to go back and see my doctor for

April showers bring May flowers

Written by Ryanne on Thursday, 26 May 2016 21:05. Posted in Hemophilia is for Girls

So, I haven't written in a long time. I feel like I haven't done a much of anything lately.
My mom has gone in for her hip replacement and has been in the hospital for the last 5 weeks. When I am in pain or hurting I can complain and move on but when my family is hurting I find it paralyzing. I don't feel like talking or writing or socializing.

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