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I am new to this website. My 2 sons are hemophiliacs. One of them is seriously ill & diagnosed with intracranial bleeding (bleeding in d brain) for almost a month now. He has developed resistance (inhibitors) to factor VIII. The only option available is to administer factor VII. Unfortunately its not available in my country Nigeria. Pls kindly donate to us as a matter of urgence to save his life19 hours 18 minutes ago
i feel very good .. to night :D10 months ago
Hello. If being a young mom at the age of 17 wasn't hard enough, my son was diagnosed with hemophilia last year. Now most people at the hospital call me a "pro" !! Lol12 months ago
My name is Amelia and I will be upfront and say that I do not have a friend or relative with hemophilia.
I'm an author, specifically of gay romance, and I'm researching a book told from the first person POV of a man with hemophilia. It is of the utmost importance to me that I present this subject as accurately and respectfully as possible. I do not want to sensationalize or make incorrect assumptions.
While the research I have been doing has provided great general and clinical details, it's not really helping me to get into the details of his daily life, how he might feel about certain things, etc.
I need details both mundane and intimate. I need to know about daily life and activiites, how certain events feel both physically and emotionally. This book being a romance, how a hemophiliac conducts himself starting a new relationship and how he handles his sexuality is going to be an issue, so some of my questions will be very adult-oriented. Almost all of them (with one notable exception) can be answered by anyone, gay or straight. Some are specific to men, and that one notable exception I mentioned can be answered by anyone, male or female, who practices certain forms of intercourse.
I'm not going to post my questions here, since some of them are not safe for work. Administrators, if you would like to give me permission to post my questions openly, I will be happy to do so in whichever forum you think most appropriate. Otherwise, please feel free to send me a private message, or use the contact form at ameliacgormley.com/about if you would be interested in engaging in a correspondence to field my questions, or possibly volunteering to read parts of the manuscript as it's being written to verify my accuracy.
Thank you and I'm glad to be here!
Read More...1 year ago
Baxter and Hemophilia Foundation of Northern California
Invite you to participate in Facts First, an educational program
for individuals with a bleeding disorder*
Topic: Facts First, an educational program for individuals with a bleeding disorder*
Date: Tuesday, February 19thy, 2013 6:30 – 9PM Time:
Location: Hilltop 1892, 850 Lamont Ave., Novato, CA
Read More...1 year ago