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  • Barry Rimes - added a new event, Technical Resources
  • null
    yesterday
  • I am new to this website. My 2 sons are hemophiliacs. One of them is seriously ill & diagnosed with intracranial bleeding (bleeding in d brain) for almost a month now. He has developed resistance (inhibitors) to factor VIII. The only option available is to administer factor VII. Unfortunately its not available in my country Nigeria. Pls kindly donate to us as a matter of urgence to save his life
    1 month ago
  • aez
    i feel very good .. to night :D
    11 months ago
  • Hello. If being a young mom at the age of 17 wasn't hard enough, my son was diagnosed with hemophilia last year. Now most people at the hospital call me a "pro" !! Lol
    1 year ago
  • hello friends i am a new member of this group. kindly help and support me in battling this war against hemophilia that my son has been suffering from.
    1 year ago
    john Welcome Kam, let us know how we can help.
    1 year ago
  • ACGauthor created a new topic Hello from an author doing research! in the forum.
    Hello,

    My name is Amelia and I will be upfront and say that I do not have a friend or relative with hemophilia.

    I'm an author, specifically of gay romance, and I'm researching a book told from the first person POV of a man with hemophilia. It is of the utmost importance to me that I present this subject as accurately and respectfully as possible. I do not want to sensationalize or make incorrect assumptions.

    While the research I have been doing has provided great general and clinical details, it's not really helping me to get into the details of his daily life, how he might feel about certain things, etc.

    I need details both mundane and intimate. I need to know about daily life and activiites, how certain events feel both physically and emotionally. This book being a romance, how a hemophiliac conducts himself starting a new relationship and how he handles his sexuality is going to be an issue, so some of my questions will be very adult-oriented. Almost all of them (with one notable exception) can be answered by anyone, gay or straight. Some are specific to men, and that one notable exception I mentioned can be answered by anyone, male or female, who practices certain forms of intercourse.

    I'm not going to post my questions here, since some of them are not safe for work. Administrators, if you would like to give me permission to post my questions openly, I will be happy to do so in whichever forum you think most appropriate. Otherwise, please feel free to send me a private message, or use the contact form at ameliacgormley.com/about if you would be interested in engaging in a correspondence to field my questions, or possibly volunteering to read parts of the manuscript as it's being written to verify my accuracy.

    Thank you and I'm glad to be here!
    Read More...
    1 year ago